Rare Disorders

Office of Rare Diseases
National Institutes of Health 
6100 Executive Boulevard
Room 3B01, MSC 7518
Bethesda, Maryland 20892-7518
Phone: 301-402-4336 
Fax: 301-480-9655 
Email: ord@od.nih.gov 
www.rarediseases.info.nih.gov 

National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: 203-744-0100 or
800-999-6673 (voicemail only)
TDD Number: 203-797-9590
Fax: 203-798-2291
Email: orphan@rarediseases.org 
www.rarediseases.org