Additional Resources
Resources by Category
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Academic Journals
Journal of the American Academy of Dermatology www.eblue.org Journal of Investigative Dermatology www.nature.com/jid/index.html Archives of Dermatology http://archderm.ama-assn.org PubMed – U.S. National Library of Medicine www.ncbi.nlm.nih.gov/pubmed General Information
The Society for Investigative Dermatology 526 Superior Avenue East, Suite 540 Cleveland, OH 44114 Phone: 216-579-9300 Fax: 216-579-9333 www.sidnet.org Email: sid@sidnet.org American Academy of Dermatology 930 E. Woodfield Road P. O. Box 4014 Schaumburg, IL 60168-4014 Phone: 847-330-0230 Fax: 847-330-0050 www.aad.org American Contact Dermatitis Society 2323 North State Street, #30 Bunnell, FL 32110 Phone: (386) 437-4405 Fax: (386) 437-4427 Email: info@contactderm.org www.contactderm.org Society for Pediatric Dermatology 8365 Keystone Crossing, Suite 107 Indianapolis, IN 46240 Phone: (317) 202-0224 Fax: (317) 205-9841 Email: spd@hp-assoc.com www.pedsderm.net Women’s Dermatologic Society 575 Market Street, Suite 2125 San Francisco, CA 94105 Phone: (877) WDS-ROSE Email: wds@womensderm.org www.womensderm.org Patient Support Groups
Albinism National Organization for Albinism and Hypopigmentation (NOAH) 1530 Locust Street, Box 29 Philadelphia, PA 19102-4415 Phone: 215-545-2322 or 800-473-2310 Email: noah@albinism.org www.albinism.org Alopecia Areata National Alopecia Areata Foundation P. O. Box 150760 San Rafael, CA 94915-0760 Phone: 415-472-3780 Fax: 415-472-5343 Email: info@naaf.org www.naaf.org Arthritis Arthritis Foundation P. O. Box 7669 Atlanta, GA 30357-0669 Phone: 404-872-7100 Info Line: 800-568-4045 www.arthritis.org Cancer National Cancer Institute Public Inquiries Office 6116 Executive Blvd., Room 3036A Bethesda, MD 20892-8322 Phone: 800-4-CANCER www.cancer.gov Chicken Pox/Shingles (Varicella-zoster)
VZV Research Foundation 24 E. 64th Street New York, NY 10021 Phone: 212-371-7280 Fax: 212-838-0380 www.vzvfoundation.org Cutaneous T-Cell Lymphoma – Mycosis Fungoides
CTCL-MF E-mail Support List To subscribe, send email to: listserv@acor.org In body of the message write "Subscribe CTCL-MF." Owned/founded by: Judy Jones - judy@mffoundation.org Cutaneous Lymphoma Foundation PO Box 374 Birmingham, MI 48012-0374 Phone: 248-644-9014 Fax: 248-644-9014 Email: info@clfoundation.org www.clfoundation.org Dermatitis Herpetiformis
Celiac Disease Foundation 13251 Ventura Blvd., Number 1 Studio City, CA 91604-1838 Phone: 818-990-2354 Fax: 818-990-2379 www.celiac.org Celiac Sprue Association/USA P. O. Box 31700 Omaha, NE 68131-0700 Phone: 402-558-0600 or 877-CSA-4-CSA Fax: 402-558-1347 www.csaceliacs.org Gluten Intolerance Group (Dermatitis Herpetiformis) 15110 10th Avenue, SW, Suite A Seattle, WA 98166 Phone: 206-246-6652 Fax: 206-246-6531 www.gluten.net Dermatomyositis
Myositis Association of America 1233 20th Street, NW, Suite 402 Washington, DC 20036 Phone: 202-887-0088 Fax: 202-466-8940 www.myositis.org Muscular Dystrophy Association 3300 E. Sunrise Drive Tucson, AZ 85718 Phone: 800-572-1717 Fax: 601-529-5300 www.mdausa.org Dermatology
Dermatology Foundation 1560 Sherman Avenue Suite 870 Evanston, IL 60201-4808 Phone: 847-328-2256 Fax: 847-328-0509 www.dermatologyfoundation.org National Eczema Association for Science and Education 4460 Redwood Highway, Suite 16-D San Rafael, CA 94903-1953 Phone: 415-499-3474 or 800-818-7546 Fax: 415-472-5345 www.nationaleczema.org Ehlers Danlos Syndrome
Ehlers Danlos National Foundation 3200 Wilshire Blvd., Suite 1601, South Tower Los Angeles, CA 90010 Phone: 213-368-3800 Fax: 213-427-0057 www.ednf.org Epidermolysis Bullosa
Dystrophic Epidermolysis Bullosa Research Association of America (D.E.B.R.A. of America, Inc.) 5 West 36th Street, Suite 404 New York, NY 10018 Phone: 212-868-1573 Email: staff@debra.org www.debra.org Genetic Disease
The Alliance of Genetics Support Groups 4301 Connecticut Ave., NW, Suite 404 Washington, DC 20008-2369 Phone: 202-966-5557 Fax: 202-966-8553 Email: info@geneticalliance.org www.geneticalliance.org Histiocytosis Association of America, Inc. 332 North Broadway Pitman, NJ 08071 Phone: 856-589-6606 or 800-548-2758 (US and Canada only) Email: jmt4histio@aol.com www.histio.org Human Papillomavirus
HPV Support Program American Social Health Association P. O. Box 13827 Research Triangle Park, NC 27709 Phone: 919-361-8400 Fax: 919-361-8425 www.ashastd.org Ichthyosis
Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST) 1364 Welsh Road G2 North Wales, PA 19454 Phone: 215-619-0670 Fax: 215-619-0780 Email: info@scalyskin.org www.scalyskin.org National Registry for Ichthyosis and Related Disorders
University of Washington Department of Dermatology 1959 N.E. Pacific Street, Room BB1353 Box 356524 Seattle, WA 98195 Phone: 800-595-1265 Email: info@skinregistry.com www.skinregistry.org Leprosy (Hansen’s Disease)
Communications Unit Special Programme for Research and Training in Tropical Disease (TDR) World Health Organization 1211 Geneva 27 Switzerland Phone: 41-22-791-3725 Fax: 41-22-791-4854 Email: tdr@who.int www.who.int Melanoma
American Melanoma Foundation 4150 Regents Park Row, Suite 300 La Jolla, CA 92037 Phone: 858-882-7712 Fax: 619-448-2902 www.melanomafoundation.org Neurofibromatosis
Children’s Tumor Foundation 95 Pine Street, 16th Floor New York, NY 10005 Phone: 212-344-6633 Fax: 212 747-0004 E-mail: info@ctf.org www.ctf.org Ostomy
United Ostomy Association, Inc. P.O. Box 66 Fairview, TN 37062-0066 Phone: 949-660-8624 or 800-826-0826 www.uoa.org Pemphigus and Pemphigoid
The International Pemphigus Foundation 2701 Cottage Way #16 Sacramento, California 95825 Phone: 916-922-1298 Fax: 916-922-1458 email: pemphigus@pemphigus.org www.pemphigus.org Porphyria
The American Porphyria Foundation P. O. Box 22712 Houston, TX 77227 Phone: 713-266-9617 Fax: 713-840-9552 Email: porphyrus@aol.com www.porphyriafoundation.com Pseudoxanthoma Elasticum (PXE)
National Association for Pseudoxanthoma Elasticum, Inc. (NAPE) 8764 Manchester Road, Suite 200 St. Louis, MO 63144-2724 Phone: 314-962-0100 Fax: 314-962-0100 Email: pxenape@napxe.org www.pxenape.org PXE International, Inc.
4301 Connecticut Avenue, NW, Suite 404 Washington, D.C. 20008-2369 Phone: 202.362.9599 Fax: 202.966.8553 Email: info@pxe.org www.pxe.org Psoriasis
National Psoriasis Foundation 6600 S.W. 92nd, Suite 300 Portland, OR 97223 Phone: 503-244-7404 or 800-723-9166 Fax: 503-245-0626 www.psoriasis.org Rare Disorders
Office of Rare Diseases National Institutes of Health 6100 Executive Boulevard Room 3B01, MSC 7518 Bethesda, Maryland 20892-7518 Phone: 301-402-4336 Fax: 301-480-9655 Email: ord@od.nih.gov www.rarediseases.info.nih.gov National Organization for Rare Disorders 55 Kenosia Avenue PO Box 1968 Danbury, CT 06813-1968 Phone: 203-744-0100 or 800-999-6673 (voicemail only) TDD Number: 203-797-9590 Fax: 203-798-2291 Email: orphan@rarediseases.org www.rarediseases.org Rosacea
National Rosacea Society 196 James Street Barrington, IL 60010 Phone: 800-NO-BLUSH Email: rosaceas@aol.com www.rosacea.org Scleroderma
Scleroderma Federation, Inc. Peabody Office Building 300 Rosewood Drive, Suite 105 Danvers, MA 01923 Phone: 978-463-5843 or 800-722-HOPE Email: sfinfo@scleroderma.org www.scleroderma.org Scleroderma Research Foundation 220 Montgomery Street, Suite 1411 San Francisco, CA 94104 Phone: 415-834-9444 Fax: 415-834-9177 www.srfcure.org Sjögren’s Syndrome
Sjögren's Syndrome Foundation 6707 Democracy Blvd., Suite 325 Bethesda, MD 20817 Phone: 800-475-6473 Fax: 301-530-4415 www.sjogrens.org Skin Research & Education for ALL Skin Disorders
American Skin Association 346 Park Avenue South, 4th Floor New York, NY 10010 Phone: 212-889-4858 or 800-499-SKIN Fax: 212-889-4959 www.americanskin.org Dermatology Foundation 1560 Sherman Avenue, Suite 870 Evanston, IL 60201-4808 Phone: 847-328-2256 Fax: 847-328-0509 Email: dfgen@dermatologyfoundation.org www.dermatologyfoundation.org Skin Cancer
National Council on Skin Cancer prevention 13203 Larson Court Mount Airy, MD 21771 www.skincancerprevention.org Skin Cancer Foundation 149 Madison Avenue, Suite 901 New York, NY 10016 Phone: 212-725-5176 Fax: 212-725-5751 Email: info@skincancer.org www.skincancer.org Vitiligo
National Organization for Albinism & Hypopigmentation (NOAH) P.O. Box 959 East Hampstead, NH 03826-0959 Phone: 800-473-2310 www.albinism.org National Vitiligo Foundation P.O. Box 23226 Cincinnati, OH 45223 Phone: 513-541-3903 Email: info@nvfi.org http://nvfi.org Government Organizations
National Institutes of Health 9000 Rockville Pike Phone: (301) 496-4000 Email: nihinfo@od.nih.gov Bethesda, MD 20892 www.nih.gov Centers for Disease Control and Prevention 1600 Clifton Road Atlanta, GA 30333 Phone: (888) 232-6348 Email: cddinfo@cdc.gov www.cdc.gov Centers for Medicare and Medicaid Services 7500 Security Boulevard Baltimore, MD 21244 www.cms.hhs.gov |
RESOURCES
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